research has come so far in the last three yrs. I have had rsd for 17 yrs now and when i got it doctors thought you were making up your pain or trying to get out of work. thank god for my doctor who beleaved in me . im in stage three but i still have hope for a cure ! good luck with your treatment . i hope that no one ever has to go thrue this pain,

Thank you so much for leaving this site up! I was just diagnosed a few weeks ago, I'm 27 and have been overwhelmed by the lack of hope. To read her story, to hear she has gotten life back. It is one of the few lights I have seen. If you know any specialists in the NY area I would be really thankful. Thanks again!

Dear Brooks Family, I am so happy to hear Tracy is enjoying Life again. I have had full body RSD for 5 yrs now. I will be leaving for the Inpatient Ketamine on April 7th with Dr. Schwartzman. I am nervous and hopeful. Please take a look at my website...God Bless http:// www.robertsfightwithrsd.webs.com

I am happy to hear of your daughter's recovery. I am in the process of organizing a fund raiser for my fincee Joe, who has been living with RSD/CRPS for over 4 years now. Joe was a vibrant guy, carefree and well at times a little too fun loving :) On September 29, 2005 his life as he knew it came to an end. The local police dept brought in a DUI into the ER that he had worked in for 7 years. The suspect was able to get the officer's service revolver and subsequently shot not only that officer , another officer who was also there and Joe. Joe tried to keep the suspect from fleeing, but he was injured and not able to keep a good grip on the suspect, the suspect then went to one of the fallen officer's shooting him in the head twice, fatally injurying him. Joe is no longer able to work, he had two jobs, he was an active volunteer with the local rescue sqaud that his step father founded, all taken away in less than 5 seconds. Joe has "failed" all of the other treatments for RSD/CRPS and was hoping to have the Ketamine Infusions, but Medicare, his only insurance denied the treatments, so he suffers, still. It is heartbreaking, and to be honest, I have not always been the greatest support, NO ONE knows this pain unless you have suffered it, I recently was diagnosed with RSD/CRPS, although I do not feel mine is as bad as Joe's, I can tell you it sure is aweful!!! So, with al of this being said, I am glad that someone has benefited from the Ketamine, although your daughter had the Ketamine Coma. I am holding out hope that somehow, I can make this fundraiser work. Joe does not know anything about this, I do not want to get his hopes up, in case I fail, he does not need anymore disappointment. I wish your daughter future success and continued relief. Thank you for reading my post. Leslie

Brooks family, looking over your site, and relizing how much pain Tracy was in was a real eye opener to me. I was diagnosed with CRPS when I was only 11. I was very lucky in the way that I only lived with the pain for a few months before being diagnosed. it took about 2 years for me to fully recover that attack. I am 15 now, and have been pain free for a little over 2 years. the doctor says im in remission but it will come back. seeing what tracy went through, I feel gratefull for my "short" experience. i hope everything is well, and everyone is healthy. god bless. ~Alexis